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National Policies

 

Every Disabled Child Matters (EDCM) is a campaign to get rights and justice for every disabled child. We work closely with the disabled children's sector and our 34,000 supporters to lobby Government to ensure disabled children and their families have the services and support they need to lead ordinary lives. Click here to go to our website with newsfeeds

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Every disabled child matters

Parents' expectations of short breaks, short breaks tracking second interim report (June 2010)

Family Voice Norfolk has been involved in this tracking project together with 3 other parent participation groups from 3 other local authorities. It is an example of how we are nationally helping parents to have their voices heard.

National Framework for Children and Young People’s Continuing Care

Although the numbers of children with high level Complex Health Needs are always low these long awaited, recently published guidelines will be of interest to any families who are going through this process or who may under consideration for Continuing Care. This guidance very clearly lays out what to expect, how parents are involved along with children and young people too of course, if they are able. NHS Norfolk already has a Continuing Care Commissioning Nurse and a multi-agency panel to look at all local cases. For further information any families would need to speak to their Paediatrician or Community Nursing team.

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Valuing People

Valuing People Now: a new three-year strategy for people with learning difficulties.

See website